This month is all about celebrating the voices, stories, and joy of people with Down syndrome. In this post, NAPA PT Cait Parr shares what she wishes more people knew about Down syndrome.
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As international discussion over prenatal testing for Down syndrome grew, researchers noted one perspective was noticeably absent from the research literature—the voices of people with Down syndrome themselves! In a 2011 study, 296 people with DS shared about their lives and, for the first time, revealed their advice for expectant couples. Their views and responses were collectively and systematically analyzed. The overwhelming majority of people with Down syndrome surveyed indicated they live happy and fulfilling lives. When asked, “If a new mom and dad just had a baby with Down syndrome, what would you like to tell them?”, many people with DS wanted to express that their own lives are good, saying “It’s not so bad having Down syndrome” and “If everyone was as happy as me, that would be great.” One individual with Down syndrome shared, “I am very happy in my life. I have friends who care about and love me.” The general sentiment towards the new parents was that they need not worry:
Patience was of particular importance to the interview participants with Down syndrome, who stated, “The baby has to work hard. Help the baby reach their goals.” and “Be patient because I found out that it is harder for me to learn.” Many participants also highlighted similarities between people with DS to those without DS, saying “The baby is just like you and me, just a little different.” and “That baby is not different from a regular person just because they have a disability.” We love what these individuals had to say about love: “Love them, and they will love you lots.”
Instagram is a great way to connect with some of our favorite friends with Down syndrome. Here are some of our favorite accounts to follow:
NAPA Center is a world-renowned pediatric therapy clinic with locations throughout the U.S., Australia, and the U.K. NAPA was founded in 2008 by a mother who dedicated her life to finding the best therapies for her son with cerebral palsy. Over fifteen years later, NAPA is now recognized as a global leader in pediatric therapy, offering the best and most innovative tools and methods from around the world.
If your child needs our services, we will work closely with you to select the best therapies for them, creating a customized program specific to your child’s needs and your family’s goals. Contact our team today — we’ll start with a free 30-minute screening with a therapist to learn more about your child and begin their individualized therapy plan. Welcome to the NAPA Family!
Cait Parr is a pediatric physical therapist at NAPA Center. Her favorite animal is snails, because they remind her to slow down and enjoy the beautiful details about life.
